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D-MoZone is the place to find out what’s new with pianist/composer/educator Diane Moser. Keep an eye on this blog for updates on music, health, gigs, fundraisers, random thoughts and all things D-Mo. And please keep sending your thoughts, good wishes and comments this way—they’re always needed and always appreciated.

Tuesday, June 22, 2010

Interesting article about Novarits-Gleevec-patents and India

Novartis is trying to get a patent for Gleevec in India...
On May 19, 2006, Novartis had filed seven cases in the court, against the government, Cancer Patients Aid Association and generic manufacturers, challenging the rejection of its Gleevec patent application.

Gleevec is used to treat chronic myeloid leukemia, a life threatening form of cancer. It is a $2.2 billion drug, posting double-digit growth figures.

The drug helps in prolonging the life of cancer patients. Several Indian pharma firms like Natco, Cipla, Ranbaxy and Hetero produce the generic equivalent.

While Gleevec sells for around Rs 1.2 lakh per patient per month, a generic drug costs Rs 9,000 per patient per month.

I didn't even know there was a generic version out there-but probably not available here in the states.

Life Fest 2010

I will be attending-through music-the Friday night gala of Life Fest GIST 2010:A Decade of Difference sponsored by the Life Raft group-an organization dedicated to helping those of us with GIST.
This rare disease that I have called GIST has only been around for 10 years. But what a difference 10 years can make. I am inspired by Tania Stutman, founder of the GIST Cancer Research Fund, who upon learning that she had this rare disease over 10 years ago-went door to door -by herself-soliciting donations that she gave to cancer researchers to figure out what GIST actually was.
On their website-it states that they have given away $1 Million to GIST cancer researchers to find a cure-that's totally awesome!
I am inspired by the folks at Life Raft who have organized this event called Life Fest, bringing together fellow GISTers, doctors, and researchers to educate and illuminate all of us about the recent medications, trials and what's next.
Both groups work tirelessly with doctors, researchers and GISTers towards understanding the disease, promoting and funding new research, networking with GISTers to find the right doctor, the right medication, testing and sometimes just a time to talk.
Without both of these groups-I would be completely lost-so I am extremely grateful to their hard work and dedication to helping all of us who have GIST.

Thursday, June 17, 2010

When The Body Says No......

I just finished reading this amazing book "When The Body Says No" by Dr. Gabor Mate-it's about the relationship between stress and disease.
At times, it's difficult to read this book, especially when the various stresses of the various case studies become all too familiar.
But it's a fascinating book about the new study of psychoneuroimmunology-yep that's a big word-also known as PNI.
PNI is the study of the connection between the mind and the body and the role of our environment.
Before you throw up your hands and say-oh yeah-another new agey thing-let me assure you-this is very much NOT a new agey thing. Dr Mate is a family practitioner, and worked with biologists, cancer researchers, psychotherapists, oncologists and many other health practitioners in gathering his data to present this insightful book.
As I said before, it's a tough read, but the last chapter entitled "The Seven A's of Healing" provides a "plan" for healing and the prevention of disease.
When I talked to my oncologist many months ago about the level of stress I was feeling, he sort of shrugged it off as to yes-everyone has stress. That really angered me-and I told him so. Unfortunately, he had no suggestions for me, but he did listen a little more.
Fortunately, I found this book through my dear friend and fellow MacDowell Colony fellow-Billy Newman-a great guitarist and composer. Billy called me many times a week-for many weeks-after my return from the hospital-just to let me talk about what I was experiencing-which was incredibly helpful to me.
I've also had many wonderful conversations with fellow cancer patients, who have experienced the same "mind issues" that I have-which was very reassuring because of course, the doctors want you to think that you're the only one having these issues-and-these issues are not very important.
After you read this book-you're gonna see just how VERY important they are.